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Share only the information needed to get a useful answer, remove identifying details, and check the specific chatbot’s privacy settings and notice before you type or upload anything. In the United States, HIPAA does not automatically cover a consumer chatbot just because it handles health questions; other protections may apply depending on the service and its role.
Is your health information protected when you use an AI chatbot?
It depends on who operates the service, the service’s relationship to health care providers or plans, what information it collects, and which laws apply. A chatbot’s health-related purpose alone does not establish that it is covered by HIPAA.
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HHS says the HIPAA Rules apply to covered entities—such as health plans, qualifying health care providers, and health care clearinghouses—and, in defined relationships, to business associates handling information for them. A general-purpose chatbot used directly by a consumer may not be acting in one of those roles. See HHS guidance for consumers.
That does not mean all health information outside HIPAA is unprotected. The FTC’s Health Breach Notification Rule applies to certain personal health record vendors, related entities, and service providers. Amendments that took effect July 29, 2024 clarify the rule’s application to many health apps and similar technologies; they do not make every chatbot subject to it. The FTC also identifies other laws and obligations that may be relevant. See the FTC’s rule overview and its compliance guidance.
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What counts as health information in a prompt?
Obvious examples include a diagnosis, medication list, test result, or treatment history. Information that seems indirect can also reveal health details: browsing activity, location, or purchases may help identify a condition or care pattern. The FTC discusses these categories in its health products compliance guidance.
Before sending a question, look for identifiers and context that are not necessary to answer it:
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- Your name, email address, phone number, home or work address, or exact location.
- Date of birth, appointment dates, record or insurance numbers, and other unique identifiers.
- Names of clinicians, clinics, employers, or family members when they do not affect the question.
- Document headers, labels, image backgrounds, or file metadata that may identify you.
Instead of pasting a full record, you might ask, “What can cause a mildly elevated result for this test?” and include only the result and units if needed. Leave out your name, birth date, facility, and unrelated history. Keep relevant context—such as age range, pregnancy, or a medication—when omitting it could make the answer misleading, but share no more than the question requires.
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How to check a chatbot before sharing health details
- Read the current privacy notice. Look for the data the provider collects, how it uses prompts and uploads, how long it retains them, whether people may review them, and whether information goes to connected services or third-party tools.
- Inspect account controls. Check settings for model improvement or training, chat history, memory, deletion, and retention. These controls can govern different things; turning off model improvement does not necessarily mean a conversation is not stored or cannot be accessed for another stated purpose.
- Check temporary-chat terms. A temporary or disposable chat can change some handling, but do not assume it removes every copy or prevents all access. Read the service’s explanation of what the option changes and what it does not.
- Consider tools and actions separately. If the chatbot can search, take actions, or connect to another service, check whether submitted information is shared with that tool and what terms govern it.
- Recheck before connecting data. A health-record or wearable connection can expose more information than a single prompt. Review the permission scope, data categories, how to disconnect, and any separate health privacy notice.
ChatGPT: distinguish its privacy controls from its health-data terms
OpenAI documents controls for model improvement, Temporary Chat, memory, chat history, and deletion. They address different aspects of a conversation, so use the Data Controls FAQ and Memory FAQ to understand the current options for the account and product you use.
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ChatGPT Health has a separate Health Privacy Notice. OpenAI describes connected medical records and other health information there, including specified access by authorized personnel and trusted service providers. OpenAI states that conversations using connected medical records and Apple Health information in ChatGPT Health are not used to train its foundation models or target ads. That statement is specific to the described ChatGPT Health use; it should not be generalized to every ChatGPT conversation or another chatbot. Read the notice and connected-data permissions before linking an account.
What to do if you already shared something sensitive
Use the service’s available deletion controls for the conversation, uploaded file, memory, or connected data, as applicable, and review the provider’s notice to understand what deletion covers and any stated retention exceptions. Disconnect health apps or records you no longer want linked. If the information was sent to a third-party tool, check that tool’s privacy terms and available deletion process too. Do not assume that deleting a visible chat necessarily deletes every related copy or record.
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Use a chatbot for preparation, not as a substitute for care
A chatbot can help you organize questions for a clinician or translate unfamiliar language into plain terms. For decisions about diagnosis, medication, or treatment, verify consequential information with a qualified health professional. This is especially important when a chatbot has only a partial or de-identified account of your situation.
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