Brooke Eby, the TikTok creator who used candid videos and humor to show what life with ALS was like, died on October 1, 2026, at 37. She had been diagnosed with amyotrophic lateral sclerosis in March 2022, four years after first noticing symptoms. Remembrances from the Muscular Dystrophy Association and Target ALS followed on October 2.
Who was Brooke Eby?
Eby was a creator known online as @limpbroozkit. Her videos paired humor with frank accounts of daily life with ALS, helping make the disease and its effects more visible to a broad audience. Rolling Stone Australia reported more than 300,000 TikTok followers in its October 3, 2026 obituary; that is an outlet-reported figure from that time, not a current platform count.
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Her storytelling was not limited to advocacy slogans. Eby brought her personality and creative choices to the subject, speaking directly about what living with the disease meant to her. In remarks from a 2025 interview quoted by Rolling Stone Australia, she said: “All I really care that people remember is someone like me could get this disease, and that it took me as quickly as it did.”
When was Brooke Eby diagnosed with ALS?
Eby first noticed a slight limp in 2018, according to the ALS Association. She received an ALS diagnosis in March 2022, at age 33, after four years of unexplained symptoms, the Muscular Dystrophy Association reported. ALS is also known as Lou Gehrig’s disease.
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How did Brooke Eby support the ALS community?
She created a place for patients and caregivers to connect
Eby founded ALStogether, an online Slack community for people living with ALS and caregivers to connect and exchange information. The organization describes itself as a community for patients and caregivers and says it is a program of the ALS Network.
ALS Network president and CEO Sheri Strahl, quoted by Rolling Stone Australia, said: “Brooke changed the way people see ALS, but she also changed the way people living with ALS find and support one another.”
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She raised awareness and money, and pressed the research community to act
Target ALS described Eby as rallying her community and raising money for ALS organizations. The MDA awarded her its Wings Over Wall Street Spirit Award. She also delivered a keynote address to more than 2,000 members of the neuromuscular disease research and clinical community at the MDA Clinical & Scientific Conference, according to the association.
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What did Eby say to people newly diagnosed with ALS?
In the MDA remembrance, writer Mindy Henderson—Eby’s friend—recalled her advice to people facing a new diagnosis: “Find people who understand. Let yourself grieve. And then, when you’re ready, figure out what your particular gifts allow you to do.” That counsel reflected the combination present in Eby’s own work: making room for the difficulty while finding ways to connect and contribute.
Independent reader supportYour contribution helps us test, update, and keep practical guides available for everyone.Where did Eby’s family ask people to direct support?
Vogue reported that Eby’s family asked people moved by her story to consider donating to ALStogether or Team Gleason. ALStogether is a peer community associated with the ALS Network; Team Gleason supports people living with ALS. This was a charitable request, not an endorsement of a commercial product.
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Eby also worked with Silverts on the B.E. Collection of adaptive clothing. Silverts’ collection page lists items including open-back pants, a dress, tops and shorts, and says a portion of proceeds goes to Team Gleason. The clothing collaboration was one part of her broader work, alongside her videos, community-building and public advocacy.
Quick Recap
Sources
- MDA Quest, “Remembering Brooke Eby: A Friend Who Taught Us to Laugh, Connect, and Live Fully” (October 2, 2026)
- Target ALS, “Brooke Eby | 1988-2026” (October 2, 2026)
- Rolling Stone Australia, “Brooke Eby, Beloved TikTok Star and ALS Activist, Dead at 37” (October 3, 2026)
- Vogue, “Brooke Eby Chronicled Her Own Death Online to Find a Cure” (October 2, 2026)
- The ALS Association, “Brooke Eby: Using Humor to Spread Awareness of ALS”
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